Here are some other useful resources and links. Some are aimed at professionals, others at patients, carers and the public.
1. Oxfordshire County Council
2. Carers Oxfordshire
A partnership between Oxfordshire County Council’s Customer Service Centre (CSC) and Age UK Oxfordshire (AUKO) established in 2011 to provide new integrated information and support for adult carers of adults in Oxfordshire - www.carersoxfordshire.org.uk/cms/
3. Carers UK – the voice of carers
For both carers and professionals. A charity – information and advice about caring with practical and emotional support for carers - www.carersuk.org/
4. ageuk – Improving later life
Age Concern and Help the Aged have joined forces to become ageuk – aims to improve later life for everyone through information and advice, campaigns, products, training and research. Includes postcode entry facility to find what is available in your local area - www.ageuk.org.uk
A new charity to improve support, services and recognition for anyone living with the challenges of caring for a family member or friend who is ill, frail, disabled, or has mental health or addiction problems – includes discussion boards, blogs and a chat room - www.carers.org/
Online support service for young people aged 18 and under in the UK who help to look after someone in their family who has an illness, disability, drug/alcohol addiction or mental health condition. Has agony aunt pages, e-mail and chat sessions with online support team. -www.youngcarers.net/
6. Maggie’s Centres
Maggie’s Centres are for anyone affected by cancer from diagnosis through to the end of life, or those in bereavement - www.maggiescentres.org/
Palliativedrugs.com Ltd was founded in 2000 to promote and disseminate information about the use of drugs in palliative care. It also seeks to develop a sense of community for members of the website. There is a bulletin board to stimulate questions and debate and to share experience with colleagues.
Website of the DIPEX charity lets you share in more than 2,000 peoples’ experiences of over 60 health related conditions including many relevant to palliative care. www.healthtalkonline.org/
9. Help the Hospices
A UK charity for hospice care. If you are a patient, carer or have an interest in hospice and palliative care explore this site for information, support or to get involved. www.helpthehospices.org.uk/
10. National Cancer Action Team
11. Macmillan Cancer Support
Provides practical, medical and financial support and pushes for better cancer care.
Excellent and wide ranging information: tests and screening; treatments, causes and risk factors, cancer types; living with and after cancer; information/support for carers; and facing the end of life. Also resources for health and social care professionals. www.macmillan.org.uk/Home.aspx
12. Guideposts – Independent Living Centre
In association with Oxfordshire County Council. Promotes independence: can assist in making decisions about equipment with up to date information from local and national suppliers. Qualified occupational therapists can assess needs and demonstrate a range of equipment.www.guidepostsilc.org.uk/home-page
13. National Institute for Health and Clinical Excellence
NICE quality standards are a set of specific, concise statements that are of high quality, cost effective patient care, covering the treatment and prevention of different diseases and conditions. Wide ranging but some directly relevant to or associated with palliative care. www.nice.org.uk/
14. Social Care Institute for Excellence
SCIE improves the lives of people who use care services by sharing knowledge about what works. An independent charity working with adults, families and children’s social care and social work services across the UK.
15. National End of Life Care Programme
The NEoLCP existed up until March 2013 and was originally set up to implement the 2008 End of Life Care Strategy. Its overall aims were to:
•Promote high quality, person-centred care for all adults at the end of life
•Enable more people nearing the end of life to choose where they live and die
It works with health and social care services in the statutory, voluntary and private sectors to develop, support, promote and share good practice and produced a significant number of tools and resources. It also hosted the EoLC Intelligence Network which is now part of Public Health England.www.gov.uk/government/organisations/public-health-england
16. One chance to get it right
17. Ambitions for Palliative and End of Life Care
The website of the National Palliative and End of Life Care Partnership includes Ambitions for Palliative and End of Life Care: A national framework for local action 2015-2020 and a downloadable slide-deck.
18. Marie Curie Cancer Care
Support for people with a life-limiting illness – has short film guides designed to help you achieve the best quality of life. www.mariecurie.org.uk/
19. The Gold Standards Framework
GSF was originally developed in 2000 as a grass roots initiative to improve primary palliative care from within primary care. It is designed to optimise care in the community with the other specialities involved for all people nearing the end of life. www.goldstandardsframework.org.uk/
20. Dying Matters
21. Oxfordshire Clinical Commissioning Group
Established in April 2013 and took over some of the role of NHS South and they buy health services on behalf of everyone living in Oxfordshire. To do this successfully they need to work with local people, Oxfordshire GPs, hospital clinicians and other partners (including local government and the voluntary sector).
Oxfordshire Befriending at End of Life – a free service to people at the end of life and their carers.http://www.oxbel.org.uk/
Cruse is committed to breaking the stigma around grief and ensuring that everyone, no matter how old or young, can access the highest quality support following a bereavement.http://www.crusebereavementcare.org.uk/
25. Oxford University NHS Foundation Trust
One of the largest acute teaching trusts in the UK, with a national and international reputation for the excellence of its services and its role in teaching and research. Includes link to Patient Advice and Liaison Service (PALS). http://www.ouh.nhs.uk/
26. Cancer Buddies Network
27. CancerHelp UK
28. Palliative Care for People with Learning Disabilities
The PCPLD Network brings together service providers, people with a learning disability and carers working for the benefit of individuals with learning disabilities who have palliative care needs. http://www.pcpld.org/
30. What to Expect as Death Approaches: Information for families and caregivers.
31. Bereavement Advice Centre
A national helpline and information service offering information, support and advice on what to do after death and the practical issues and procedures that people may face. www.bereavementadvice.org
32. Guide to Coroner Service