We have a series of patient information leaflets about each part of our service which you may wish to download for patients.

Resources

Download our living with a life-limiting illness leaflet
Here are some other useful resources and links.They are aimed at patients, carers and the public.
1. Oxfordshire County Council
Details about requesting an assessment for adult social care – includes an online request form can be found at https://www.oxfordshire.gov.uk/cms/public-site/adult-social-care
Information for people finding it difficult to cope at home or whose present home may not be suitable can be found at www.oxfordshire.gov.uk/cms/content/sheltered-housing
2. Carers Oxfordshire
Information and support for adult carers of adults in Oxfordshire - www.carersoxfordshire.org.uk/cms/
3. Carers UK – the voice of carers 
For both carers and professionals. A charity – information and advice about caring with practical and emotional support for carers - www.carersuk.org/
4. ageuk – Improving later life
Age Concern and Help the Aged have joined forces to become ageuk – aims to improve later life for everyone through information and advice, campaigns, products, training and research. Includes postcode entry facility to find what is available in your local area - www.ageuk.org.uk
5. carerstrust
A new charity to improve support, services and recognition for anyone living with the challenges of caring for a family member or friend who is ill, frail, disabled, or has mental health or addiction problems – includes discussion boards, blogs and a chat room - www.carers.org/
Online support service for young people aged 18 and under in the UK who help to look after someone in their family who has an illness, disability, drug/alcohol addiction or mental health condition.  Has agony aunt pages, e-mail and chat sessions with online support team - www.youngcarers.net/
6. Maggie’s Centres
Maggie’s Centres are for anyone affected by cancer from diagnosis through to the end of life, or those in bereavement - www.maggiescentres.org/
7. healthtalk.org
Website of the DIPEX charity lets you share in more than 2,000 peoples’ experiences of over 60 health related conditions including many relevant to palliative care. www.healthtalk.org
8. Hospice UK
A UK charity for hospice care. If you are a patient, carer or have an interest in hospice and palliative care explore this site for information, support or to get involved. www.hospiceuk.org
9. Macmillan Cancer Support
Provides practical, medical and financial support and pushes for better cancer care.
Excellent and wide ranging information: tests and screening; treatments, causes and risk factors, cancer types; living with and after cancer; information/support for carers; and facing the end of life. Also resources for health and social care professionals. www.macmillan.org.uk/Home.aspx
10. Guideposts – Independent Living Centre
In association with Oxfordshire County Council.  Promotes independence: can assist in making decisions about equipment with up to date information from local and national suppliers. Qualified occupational therapists can assess needs and demonstrate a range of equipment. www.guidepostsilc.org.uk/home-page
11. Marie Curie Cancer Care
Support for people with a life-limiting illness – has short film guides designed to help you achieve the best quality of life. www.mariecurie.org.uk/
12. Dying Matters
Raising awareness of dying, death and bereavement and supporting communication skills training for GPs http://www.dyingmatters.org/
13. MIND
The Mind Guide to mental health services in Oxfordshire. http://www.oxmindguide.org.uk/
14. OxBEL
Oxfordshire Befriending at End of Life – a free service to people at the end of life and their carers.http://www.oxbel.org.uk/
15. Cruse
Cruse is committed to breaking the stigma around grief and ensuring that everyone, no matter how old or young, can access the highest quality support following a bereavement.http://www.crusebereavementcare.org.uk/
16. Oxford University NHS Foundation Trust
Information about our hospital. Includes link to Patient Advice and Liaison Service (PALS). http://www.ouh.nhs.uk/
17. Cancer Buddies Network
An online support group for anyone affected by cancer (it is not able to offer any medical opinions, diagnoses or advice about treatment). http://www.cancerbuddiesnetwork.org/
18. CancerHelp UK
Reliable easy to understand patient information from Cancer Research UK. Covers all types of cancer and has an easily accessible clinical trials database.  http://cancerhelp.cancerresearchuk.org/
19. Palliative Care for People with Learning Disabilities
The PCPLD Network brings together service providers, people with a learning disability and carers working for the benefit of individuals with learning disabilities who have palliative care needs. http://www.pcpld.org/
20. SeeSaw
Helps children and families before and after major bereavement www.seesaw.org.uk
21. What to Expect as Death Approaches: Information for families and caregivers.
Click to download
22. Bereavement Advice Centre
A national helpline and information service offering information, support and advice on what to do after death and the practical issues and procedures that people may face. www.bereavementadvice.org
23. Guide to Coroner Service
Link to PDF document: http://absco.org.uk/Resources/Documents/guide-to-coroner-service.pdf
A short guide to Coroner investigations can be found at: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/283937/coroner-investigations-a-short-guide.pdf
Click here to view our bereavement resources page
Resources

Caring today, tomorrow... and in the future

Sobell House Hospice Charity Ltd, Churchill Hospital, Headington, Oxford OX3 7LJ
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